Hi everyone, as promised here is my story. Sorry that it’s so long!! I was diagnosed at the age of 15, after having presented with the following symptoms: unable to straighten fingers, skin tightening on the face, extreme fatigue, severe muscle wastage on arms and shoulders and neck, difficulty swallowing and rayauds. I was diagnosed with limited scleroderma (Crest syndrome) and myositis. Went on 50 mg cortisone daily immediately to settle symptoms. Having a big puffy face in high school was not so great but at least my body responded well to the meds and symptoms improved.During my university days, I was on methotrexate, colchicine, low dosage cortisone. Diet was like a typical student – not health-conscious at all. As the years passed and I entered the working world, the calcinosis got progressively worse and I developed big lumps on my elbows, fingers, buttocks, feet, wrists, and knees. Felt fatigued and constantly dealing with pain and infected calcium deposits which left me little option but to quit my job at age 26. Had numerous amounts of surgery to try debulk the calcium but it all grew back.
The last 4/5 years I have been on a self-healing journey to try to get to the bottom of this rare condition and find ways to improve my quality of life. Have experimented with the following: different diets (paleo, to alkaline diets, to anti-inflammatory to low sugar and low carb); ozone therapy; biomat far-infrared; rife machine; kinesiology; lymph drainage. Had my worst year ever in 2015 when joints and skin became so inflamed I was bed-bound for months and in pain daily for at least a year. The calcium grew so aggressively that it’s impaired my function in my right hand so badly that I can’t bend or straighten my fingers.
Since then am doing MUCH better and am healthiest I have been in years due to treating parasites such as Lyme disease, babesia, biofilms and also heavy metals. My energy is a hundred times better, calcium deposits have stopped growing and in some places diminished, circulation is improving, the skin is glowing, inflammation of joints is normal and I have no pain. I am by no means cured but am certainly vastly improved from how I was and I believe my body will continue to heal further. I used a rife machine and very specific supplements to treat the parasites.
I am now 31 and for the first time in years feel hopeful about my future and being able to manage this condition. I can say that I love my life and my quality of life Is good. This process has certainly made me a stronger and more appreciative of the simple things.
I do believe that the parasites were my main trigger for this disease. My stress levels are manageable now as I have found a career in life and health coaching where my time is flexible and my energy levels are managed. It’s still very much a work in progress and a daily balancing act of managing my diet, sleep patterns, stress, self-care regime, medications, etc. I’m still taking the Lyme disease treatment and I am still on methotrexate, colchicine, primaquine to keep my symptoms at bay while I still address the underlying causes. I take fish oil supplements, vitamin D, probiotics, MSM powder, biotin, and a good multivitamin. For me, it’s a balance of western and alternative together.
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