I have been diagnosed with Joint Hypermobility Syndrome,
Fibromyalgia and Ehlers Danlos Syndrome type 3. So as part of these conditions I have problems
with my stomach as well, so I can't eat certain foods. I have been
on heavy painkillers it basically means that you are then out for the
count for a few days whilst your body adjusts to them, the worst part is the
side effects that come with these medications. As far as side effects, I would
end up sleeping, feeling tired and delirious.
I have been taking tramadol and
wearing heat packs at every moment I can. However tramadol gives me the worst
shakes in the body. (Tramadol also stopped me from being able to go for a wee
so they had to take me off of it)
I have stopped having caffeine
(due to have tachycardia, lifestyle changes I have started to use my crutches
as a support and am also registered disabled.
We have tried varying therapies from pain management and
using a tens machine which worked for a while but now doesn’t due to my fibro
it makes my skin feel as though it’s on fire! We have tried psychological
therapy (again did not work and made me angry mostly as they were trying to say
it was all in my head). The only thing that has worked for me is a combination
of heavy duty pain killers (codeine, diazepam and amitryptalyne) however I can’t
work and take these at the same time so I have had to find a healthy balance
between working and resting which is no easy feet! The other therapy I have
gone for which is my own doing is writing my blog, talking about how I’m
feeling and not sugar coating the nasty bits of chronic illnesses, if I can
help just one person through doing so it will make me feel a sense of
I would say at the moment I am feeling 0 so
perfectly in the middle of feeling worse and feeling fab, it’s a difficult
thing to battle with day to day but I have a good support network around me and
I won’t let it take over my life. Please see my blog:https://unconventionallynormal.com.
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