Story of 21years old Living with three Chronic Medical Conditions

Unconventional

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Study Type:

Member Story

Patient Sex:

Female

Patient Ethnicity:

White

Patient Age:

21

Published Date:

03/05/2018

Conditions:

Fibromyalgia

Therapies:

Integrative Medicine

Outcome:

Very Poor Poor Fair Good Very Good
Image:

Medical History

I have been diagnosed with Joint Hypermobility Syndrome, Fibromyalgia and Ehlers Danlos Syndrome type 3. So as part of these conditions I have problems with my stomach as well, so I can't eat certain foods.  I have been on heavy painkillers it basically means that you are then out for the count for a few days whilst your body adjusts to them, the worst part is the side effects that come with these medications. As far as side effects, I would end up sleeping, feeling tired and delirious. 

I have been taking tramadol and wearing heat packs at every moment I can. However tramadol gives me the worst shakes in the body. (Tramadol also stopped me from being able to go for a wee so they had to take me off of it)  

Summary

I have stopped having caffeine (due to have tachycardia, lifestyle changes I have started to use my crutches as a support and am also registered disabled.


We have tried varying therapies from pain management and using a tens machine which worked for a while but now doesn’t due to my fibro it makes my skin feel as though it’s on fire! We have tried psychological therapy (again did not work and made me angry mostly as they were trying to say it was all in my head). The only thing that has worked for me is a combination of heavy duty pain killers (codeine, diazepam and amitryptalyne) however I can’t work and take these at the same time so I have had to find a healthy balance between working and resting which is no easy feet! The other therapy I have gone for which is my own doing is writing my blog, talking about how I’m feeling and not sugar coating the nasty bits of chronic illnesses, if I can help just one person through doing so it will make me feel a sense of achievement!


I would say at the moment I am feeling 0 so perfectly in the middle of feeling worse and feeling fab, it’s a difficult thing to battle with day to day but I have a good support network around me and I won’t let it take over my life. Please see my blog:https://unconventionallynormal.com. 


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